CDE Detailed Report
Disease: Amyotrophic Lateral Sclerosis
Sub-Domain: Cognitive
CRF: Frontal Behavioral Inventory - ALS Version (FBI-ALS)
Displaying 1 - 27 of 27
Sub-Domain: Cognitive
CRF: Frontal Behavioral Inventory - ALS Version (FBI-ALS)
Displaying 1 - 27 of 27
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C11829 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - negative behavior score value | FBIALSNegBehavrScoreVal | Value of the sum of scores recorded for questions FBI-ALS Q1 through FBI-ALS Q12, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Value of the sum of scores for questions FBI-ALS Q1 through FBI-ALS Q12, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Negative behavior score: Totals for FBI-ALS Q1-Q12 | Numeric Values |
Sum of scores for Q1 - Q12. Enter numeric value for score of 0-36. |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Free-Form Entry |
0 | 36 | ||||||||
| C11840 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - utilization behavior score | FBIALSUtilzBehavrScore | Score reflecting the intensity or frequency of the participant's need to touch, feel, examine, or pick up objects within reach, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the intensity or frequency of the participant's need to touch, feel, examine, or pick up objects within reach, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Utilization Behavior | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Does s/he seem to need to touch, feel, examine, or pick up objects within reach? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11819 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - indifference emotional flatness score | FBIALSIndiffEmtnlFltnssScore | Score reflecting the extent of the participant's indifference or emotional flatness, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the extent of the participant's indifference or emotional flatness, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Indifference, Emotional Flatness | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Does s/he respond less emotionally during occasions of joy or sadness as compared to before? Has s/he lost emotional responsiveness? (If a patient is more emotionally expressive, such as with PBA, they would be rated a 0). |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11830 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - persveration obsession score | FBIALSPersvtnObsessScore | Score reflecting the intensity or frequency of the participant repeating actions or remarks excessively or exhibiting new obsessive behavior, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the intensity or frequency of the participant repeating actions or remarks excessively or exhibiting new obsessive behavior, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Perseverations, Obsessions | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Does s/he repeat or perseverate actions or remarks? Are there any new obsessive routines or behaviors? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11841 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - incontinence score | FBIALSIncontnceScore | Score reflecting the intensity or frequency of the participant's wetting or soiling her or himself, absent a urinary infection or history of childbirth or prostate problems, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the intensity or frequency of the participant's wetting or soiling her or himself, absent a urinary infection or history of childbirth or prostate problems, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Incontinence | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Has s/he wet or soiled herself? (Rate as 0 if the problem is explained by urinary infection or childbirth/prostate) |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11820 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - inflexibility score | FBIALSInflexbltyScore | Score reflecting the frequency or intensity of the participant's behavioral inflexibility, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the frequency or intensity of the participant's behavioral inflexibility, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Inflexibility | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Does s/he appear stubborn or rigid in thinking? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11831 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - irritability score | FBIALSIrritblScore | Score reflecting the intensity or frequency of the participant's being irritable or short-tempered, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the intensity or frequency of the participant's being irritable or short-tempered, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Irritability | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Has s/he been irritable or short-tempered? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11842 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - disinhibition total score | FBIALSDisinhibtnTotalScore | The value of the sum of answers for Questions 13 - 24, indicating the Disinhibition Score Total, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS), as part of the Hamilton Depression Rating Scale (HDRS) | The value of the sum of answers for Questions 13 - 24, indicating the Disinhibition Score Total, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS), as part of the Hamilton Depression Rating Scale (HDR | Disinhibition Score | Numeric Values |
Sum of scores for Q13 - Q24. Enter numeric value for score of 0-36. |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Free-Form Entry |
0 | 36 | ||||||||
| C11821 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - personal neglect score | FBIALSPrsnlNglctScore | Score reflecting the extent of the participant's neglect of personal hygiene, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the extent of the participant's neglect of personal hygiene, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Personal Neglect | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
When you think about those personal hygiene activities that they can complete on their own, does s/he neglect to initiate grooming or personal care activities as compared with their behavior in the past? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11832 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - excess jocularity score | FBIALSExcessJoclrtyScore | Score reflecting the intensity or frequency of the participant's joking excessively or inappropriately, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the intensity or frequency of the participant's joking excessively or inappropriately, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Excessive Jocularity | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Has s/he been making jokes excessively, offensively, or at the wrong time? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11843 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - form total score value | FBIALSFormTtlScoreVal | Value of the sum of all scores recorded on the form, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Value of the sum of all scores recorded on the form, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Total Score | Numeric Values |
Sum of Negative Behavior score and Disinhibition score. Enter numeric value for score of 0-72. |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Free-Form Entry |
0 | 72 | ||||||||
| C11822 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - disorganization score | FBIALSDisorgScore | Score reflecting the extent of the participant's disorganization, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the extent of the participant's disorganization, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Disorganization | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
When you consider those activities s/he is capable of completing, or activities s/he is thinking about, is s/he easily distractible, impersistent, or unable to complete a job? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11833 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - Impulsive poor judgment score | FBIALSImplsvPoorJdgmntScore | Score reflecting the intensity or frequency of the participant's displaying poor judgment in driving, spending, or making decisions, or acting impulsively or irresponsibly, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the intensity or frequency of the participant's displaying poor judgment in driving, spending, or making decisions, or acting impulsively or irresponsibly, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Impulsivity/Poor Judgment | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Has s/he been using poor judgment in decisions, spending or driving (i.e. acting impulsively, irresponsibly, or neglectfully)? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11823 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - inattention score | FBIALSInattntnScore | Score reflecting the frequency of or extent of the participant's inattention to what is happening around her or him, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the frequency of or extent of the participant's inattention to what is happening around her or him, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Inattention | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Does s/he seem unable to pay attention to what is going? Does s/he seem to lose track or not follow instructions? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11834 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - hoard score | FBIALSHoardScore | Score reflecting the extent or frequency of the participant's excessively hoarding or collecting objects or money, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the extent or frequency of the participant's excessively hoarding or collecting objects or money, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Hoarding | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Has s/he started to hoard or collect objects or money excessively? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11824 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - insight loss score | FBIALSInsghtLossScore | Score reflecting the frequency of or extent of the participant's loss of personal insight or awareness of changes in her or his behavior, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the frequency of or extent of the participant's loss of personal insight or awareness of changes in her or his behavior, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Loss of Insight | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Is s/he unaware of problems or changes in behavior, or does s/he deny them when discussed? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11835 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - social inappropriateness score | FBIALSSocialInappropScore | Score reflecting the intensity or frequency of the participant's displaying inappropriate social behavior in the activities in which she or he remains involved, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the intensity or frequency of the participant's displaying inappropriate social behavior in the activities in which she or he remains involved, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Inappropriateness | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Of the activities they remain involved in, has s/he broken social rules or has s/he said or done unacceptable things? (Has s/he been rude, or childish?) |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11825 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - logopenia score | FBIALSLogopeniaScore | Score reflecting the frequency of or extent to which the participant is uninterested in communication or unmotivated to communicate, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the frequency of or extent to which the participant is uninterested in communication or unmotivated to communicate, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Logopenia | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Does s/he have less interest or motivation to communicate? (If the patient has dysarthria or inability to speak, does s/he initiate efforts to communicate given the tools s/he has available to her?) |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11836 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - restless roam score | FBIALSRstlessRoamScore | Score reflecting the extent or frequency of the participant's exhibiting restless or roaming behavior, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the extent or frequency of the participant's exhibiting restless or roaming behavior, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Restlessness/Roaming | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Has s/he been more restless? (This may include pacing, walking excessively, or if they have limited movements, writhing in bed, simple repetitive movements, etc)? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11826 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - semantic dementia score | FBIALSSemntcDemenScore | Score reflecting the intensity or frequency of the participant's difficulty comprehending words or objects, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the intensity or frequency of the participant's difficulty comprehending words or objects, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Semantic Dementia | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Does s/he have trouble comprehending words, and/or objects, or does s/he not understand what words mean? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11837 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - aggression score | FBIALSAgressnScore | Score reflecting the intensity or frequency of physical or verbal aggression displayed by the participant, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the intensity or frequency of physical or verbal aggression displayed by the participant, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Aggression | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Is s/he aggressive physically or verbally? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11827 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - aphasia verbal apraxia score | FBIALSAphsVrblAprxiaScore | Score reflecting the intensity or frequency of the participant's making language or pronunciation errors such as stuttering or sound repetition, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the intensity or frequency of the participant's making language or pronunciation errors such as stuttering or sound repetition, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Aphasia and Verbal Apraxia | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
It is common for patients to slur words because of dysarthria. Separate from this problem, does s/he make language or pronunciation errors, such as stuttering or repeating sounds? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11838 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - hyper-oral score | FBIALSHyprOralScore | Score reflecting the extent or frequency of the participant's eating or drinking excessively or putting objects into her or his mouth, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the extent or frequency of the participant's eating or drinking excessively or putting objects into her or his mouth, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Hyperorality | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Has s/he been drinking or eating excessively, or putting objects in his/her mouth? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11817 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - apathy score | FBIALSApthyScore | Score reflecting the intensity of the participant's apathy, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the intensity of the participant's apathy, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Apathy | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Has s/he lost interest in friends? Have they lost interest in daily activities which they can still do physically? (do not rate lack of activities which they can no longer perform due to physical limitations) |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11828 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - alien hand apraxia score | FBIALSAlienHndAprxiaScore | Score reflecting the intensity or frequency of the participant's having difficulties with one or both hands, such as clumsiness, stiffness, or interference with one by the other, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the intensity or frequency of the participant's having difficulties with one or both hands, such as clumsiness, stiffness, or interference with one by the other, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Alien Hand and/or Apraxia: Has s/he developed clumsiness, stiff hand, inability to use utensils or appliances, or does a hand interfere with the other, or behaves as if it did not belong, or can s/he use both hands as before? | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
It is common for patients to have a loss of strength in their hands, but separate from this, has s/he developed clumsiness, stiff hand, inability to use utensils or appliances, or does a hand interfere with the other? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11839 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - hypersexual score | FBIALSHyprSxltyScore | Score reflecting the intensity or frequency of sexual behavior displayed or comments made by the participant, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the intensity or frequency of sexual behavior displayed or comments made by the participant, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Hypersexuality | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Has sexual behavior been unusual or excessive? This could include remarks or undressing, or is there no change in this respect? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11818 | Frontal Behavioral Inventory-ALS Version (FBI-ALS) - aspontaneity score | FBIALSAspontantyScore | Score reflecting the extent of the participant's aspontaneity, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Score reflecting the extent of the participant's aspontaneity, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS) | Aspontaneity | 0;1;2;3 | none/never;mild/occasional;moderate/often;severe/most of the time | Numeric Values |
Of the activities s/he is capable of physically, does s/he require prompting (i.e. have to be asked) because s/he does not initiate starting it on her own? |
Murphy, Jennifer, at UCSF Dept of Neurology, in process of writing. | Adult | Supplemental | 3.00 | 2013-07-22 16:57:17.79 | Frontal Behavioral Inventory - ALS Version (FBI-ALS) | Cognitive | Outcomes and End Points |
Single Pre-Defined Value Selected |
