CDE Detailed Report

Disease: Friedreich's Ataxia
Subdomain Name: Ataxia and Performance Measures
CRF: Bowel Control Scale (BWCS)

Displaying 1 - 6 of 6
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guidance) Subdomain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C11518 Bowel Control Scale (BWCS) - constipation 4 week scale BWCSConstip4WkScale Scale assessing constipation in the past 4 weeks, as part of the Bowel Control Scale (BWCS) Scale assessing constipation in the past 4 weeks, as part of the Bowel Control Scale (BWCS During the past 4 weeks, how often have you been constipated? 0;1;2;3;4 not at all;Once;Two to four times;More than weekly but not daily;Daily Numeric Values

Record the appropriate response based on your bowel function during the past 4 weeks.

The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society Adult Exploratory 3.00 2013-07-11 15:03:49.2 Bowel Control Scale (BWCS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C11519 Bowel Control Scale (BWCS) - bowel control loss 4 week scale BWCSBowelContLoss4WkScale Scale assessing how often the participant/subject lost control of bowels or had an accident in the past 4 weeks as part of the Bowel Control Scale (BWCS) Scale assessing how often the participant/subject lost control of bowels or had an accident in the past 4 weeks as part of the Bowel Control Scale (BWCS During the past 4 weeks, how often have you lost control of your bowels or had an accident? 0;1;2;3;4 not at all;Once;Two to four times;More than weekly but not daily;Daily Numeric Values

Record the appropriate response based on your bowel function during the past 4 weeks.

The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society Adult Exploratory 3.00 2013-07-11 15:03:49.2 Bowel Control Scale (BWCS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C11520 Bowel Control Scale (BWCS) - bowel control almost lost 4 week scale BWCSBowelContAlmLost4WkScale Scale assessing how often the participant/subject almost lost control of his bowels or almost had an accident in the past four weeks as part of the Bowel Control Scale (BWCS) Scale assessing how often the participant/subject almost lost control of his bowels or almost had an accident in the past four weeks as part of the Bowel Control Scale (BWCS During the past 4 weeks, how often have you almost lost control of your bowels or almost had an accident? 0;1;2;3;4 not at all;Once;Two to four times;More than weekly but not daily;Daily Numeric Values

Record the appropriate response based on your bowel function during the past 4 weeks.

The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society Adult Exploratory 3.00 2013-07-11 15:03:49.2 Bowel Control Scale (BWCS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C11521 Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale BWCSBowelContProbAltAct4WkScal Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS) Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS During the past 4 weeks, how often have you altered your activities because of bowel control problems? 0;1;2;3;4 not at all;Once;Two to four times;More than weekly but not daily;Daily Numeric Values

Record the appropriate response based on your bowel function during the past 4 weeks.

The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society Adult Exploratory 3.00 2013-07-11 15:03:49.2 Bowel Control Scale (BWCS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C11522 Bowel Control Scale (BWCS) - bowel problems restrict lifestyle 4 week scale BWCSBowelProbRestrLife4WkScale Scale measuring how often bowel control problems restricted overall lifestyle in the past 4 week as part of the Bowel Control Scale (BWCS) Scale measuring how often bowel control problems restricted overall lifestyle in the past 4 week as part of the Bowel Control Scale (BWCS During the past 4 weeks, how much have bowel problems restricted your overall lifestyle? 0;1;2;3;4;5;6;7;8;9;10 not at all;;;;;;;;;;Severely Numeric Values

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The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society Adult Exploratory 3.00 2013-07-11 15:03:49.2 Bowel Control Scale (BWCS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C11523 Bowel Control Scale (BWCS) - sum score value BWCSSumScoreVal Sum of the score for questions in the Bowel Control Scale (BWCS) Sum of the score for questions in the Bowel Control Scale (BWCS Numeric Values The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society Adult Exploratory 3.00 2013-07-11 15:03:49.2 Bowel Control Scale (BWCS) Ataxia and Performance Measures Outcomes and End Points

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