CDE Detailed Report

Disease: Parkinson's Disease
Sub-Domain: Other Non-Motor
CRF: Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS)

Displaying 1 - 30 of 30
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C17318 Parkinson's Disease Non Motor Symptoms (PD NMS) - difficulty swallowing problem choking indicator PDNMSDiffSwllwngPrblmChkngInd Indicator of participant/subject having difficulty swallowing or problems with choking in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject having difficulty swallowing or problems with choking in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Difficulty swallowing food or drink or problems with choking No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17329 Parkinson's Disease Non Motor Symptoms (PD NMS) - seeing hearing nonexistent indicator PDNMSSeeHearNonexistantInd Indicator of participant/subject seeing/hearing nonexistent things in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject seeing/hearing nonexistent things in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Seeing or hearing things that you know or are told are not there No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17340 Parkinson's Disease Non Motor Symptoms (PD NMS) - talking moving acting dream indicator PDNMSTalkMoveActDreamInd Indicator of participant/subject talking/moving/acting in their sleep in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject talking/moving/acting in their sleep in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Talking or moving about in your sleep as if you are 'acting' out a dream No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17319 Parkinson's Disease Non Motor Symptoms (PD NMS) - vomiting sickness nausea indicator PDNMSVomitingScknssNauseaInd Indicator of participant/subject vomiting or feeling nauseous in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject vomiting or feeling nauseous in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Vomiting or feelings of sickness (nausea) No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17330 Parkinson's Disease Non Motor Symptoms (PD NMS) - difficulty concentrating focused indicator PDNMSDiffConcntrtFocusInd Indicator of participant/subject experiencing difficulty concentrating or staying awake in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing difficulty concentrating or staying awake in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Difficulty concentrating or staying focused No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17341 Parkinson's Disease Non Motor Symptoms (PD NMS) - unpleasant sensations need move indicator PDNMSUnplsntSenstnNeedMoveInd Indicator of participant/subject experiencing unpleasant sensations in the legs at night and an urge to move in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing unpleasant sensations in the legs at night and an urge to move in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Unpleasant sensations in your legs at night or while resting, and a feeling that you need to move No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17320 Parkinson's Disease Non Motor Symptoms (PD NMS) - constipation strain stool indicator PDNMSConnstptnStrnStoolInd Indicator of participant/subject experiencing constipation or trouble passing a stool in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing constipation or trouble passing a stool in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Constipation (less than 3 bowel movements a week) or having to strain to pass a stool (faeces) No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17331 Parkinson's Disease Non Motor Symptoms (PD NMS) - feeling low blue indicator PDNMSFeelingLowBlueInd Indicator of participant/subject feeling sad in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject feeling sad in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Feeling sad, 'low' or 'blue' No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17342 Parkinson's Disease Non Motor Symptoms (PD NMS) - swelling leg indicator PDNMSSwellingLegInd Indicator of participant/subject experiencing a swelling of the legs in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing a swelling of the legs in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Swelling of your legs No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17321 Parkinson's Disease Non Motor Symptoms (PD NMS) - bowel incontinence indicator PDNMSBowelIncontinenceInd Indicator of participant/subject experiencing bowel incontinence in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing bowel incontinence in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Bowel (fecal) incontinence No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17332 Parkinson's Disease Non Motor Symptoms (PD NMS) - feeling anxious frightened indicator PDNMSFeelAnxiousFrightenInd Indicator of participant/subject feeling anxious in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject feeling anxious in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Feeling anxious, frightened or panicky No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17343 Parkinson's Disease Non Motor Symptoms (PD NMS) - excessive sweating indicator PDNMSExcssvSweatingInd Indicator of participant/subject experiencing excessive sweating in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing excessive sweating in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Excessive sweating No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17322 Parkinson's Disease Non Motor Symptoms (PD NMS) - bowel emptying incomplete indicator PDNMSBowelEmptyIncompleteInd Indicator of participant/subject feeling unfinished after having gone to the toilet in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject feeling unfinished after having gone to the toilet in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Feeling that your bowel emptying is incomplete after having been to the toilet No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17333 Parkinson's Disease Non Motor Symptoms (PD NMS) - feeling less more interested sex indicator PDNMSFeelLessMoreIntrstdSexInd Indicator of participant/subject feeling less/more interested in sex, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject feeling less/more interested in sex, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Feeling less interested in sex or more interested in sex No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17344 Parkinson's Disease Non Motor Symptoms (PD NMS) - double vision indicator PDNMSDoubleVisionInd Indicator of participant/subject experiencing double vision in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing double vision in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Double vision No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17323 Parkinson's Disease Non Motor Symptoms (PD NMS) - urgency pass urine rush indicator PDNMSUrgencyPssUrineRushInd Indicator of participant/subject experiencing an urgent need to pass urine in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing an urgent need to pass urine in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. A sense of urgency to pass urine makes you rush to the toilet No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17334 Parkinson's Disease Non Motor Symptoms (PD NMS) - difficulty sex try indicator PDNMSDiffcltySexTryInd Indicator of participant/subject experiencing difficulty when having sex, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing difficulty when having sex, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Finding it difficult to have sex when you try No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17345 Parkinson's Disease Non Motor Symptoms (PD NMS) - believing happening not true indicator PDNMSBelieveHappenNotTrueInd Indicator of participant/subject believing that things are happening to them that other people say are not true in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject believing that things are happening to them that other people say are not true in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Believing things are happening to you that other people say are not true No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17324 Parkinson's Disease Non Motor Symptoms (PD NMS) - get up night urine indicator PDNMSGetUpNightUrineInd Indicator of participant/subject getting up regularly at night to pass urine in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject getting up regularly at night to pass urine in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Getting up regularly at night to pass urine No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17335 Parkinson's Disease Non Motor Symptoms (PD NMS) - feeling dizzy weak standing indicator PDNMSFeelDizzyWeakStandngInd Indicator of participant/subject feeling light headed or dizzy when standing from sitting or lying down in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject feeling light headed or dizzy when standing from sitting or lying down in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Feeling light headed, dizzy or weak standing from sitting or lying No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17325 Parkinson's Disease Non Motor Symptoms (PD NMS) - unexplained pain indicator PDNMSUnexplainedPainInd Indicator of participant/subject experiencing unexplained pains in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing unexplained pains in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Unexplained pains (not due to known conditions such as arthritis) No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17336 Parkinson's Disease Non Motor Symptoms (PD NMS) - falling indicator PDNMSFallingInd Indicator of participant/subject falling in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject falling in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Falling No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17326 Parkinson's Disease Non Motor Symptoms (PD NMS) - unexplained change weight indicator PDNMSUnexplainedChangWeightInd Indicator of participant/subject experiencing an unexplained change in weight in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing an unexplained change in weight in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Unexplained change in weight (not due to change in diet) No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17337 Parkinson's Disease Non Motor Symptoms (PD NMS) - difficulty awake working driving eating indicator PDNMSDiffAwkeWrkDriveEatInd Indicator of participant/subject experiencing difficulty staying awake during activities such as working, driving or eating in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing difficulty staying awake during activities such as working, driving or eating in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Finding it difficult to stay awake during activities such as working, driving or eating No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17316 Parkinson's Disease Non Motor Symptoms (PD NMS) - dribbling saliva daytime indicator PDNMSDrbblngSalivaDytmInd Indicator of participant/subject dribbling saliva during the day in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject dribbling saliva during the day in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Dribbling of saliva during the daytime No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17327 Parkinson's Disease Non Motor Symptoms (PD NMS) - short term memory problem indicator PDNMSShortTermMemoryPrblmInd Indicator of participant/subject experiencing short term memory loss or forgetfulness in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing short term memory loss or forgetfulness in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Problems remembering things that have happened recently or forgetting to do things No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17338 Parkinson's Disease Non Motor Symptoms (PD NMS) - difficulty getting staying asleep indicator PDNMSDiffGetStayAsleepInd Indicator of participant/subject experiencing difficulty in getting to/staying asleep at night in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing difficulty in getting to/staying asleep at night in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Difficulty getting to sleep at night or staying asleep at night No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17317 Parkinson's Disease Non Motor Symptoms (PD NMS) - loss change taste smell indicator PDNMSLssChngTasteSmellInd Indicator of participant/subject experiencing a loss/change in ability to taste/smell in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing a loss/change in ability to taste/smell in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Loss or change in your ability to taste or smell No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17328 Parkinson's Disease Non Motor Symptoms (PD NMS) - apathy surrounding indicator PDNMSApathySurroundingInd Indicator of participant/subject experiencing apathy toward their surroundings and doing things in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing apathy toward their surroundings and doing things in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Loss of interest in what is happening around you or doing things No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

C17339 Parkinson's Disease Non Motor Symptoms (PD NMS) - intense vivid frightening dream indicator PDNMSIntnsVvdFrightenDreamInd Indicator of participant/subject experiencing intense/vivid/frightening dreams in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Indicator of participant/subject experiencing intense/vivid/frightening dreams in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire. Intense, vivid dreams or frightening dreams No;Yes No;Yes Alphanumeric

A range of problems is listed. Please tick the box 'Yes' if you have experienced it during the past month. If you have not experienced the problem in the past month tick the box 'No'. You should answer 'No' even if you have had the problem in the past but not in the past month.

Developed and validated by the international PD Non Motor Group For information contact: susanne.tluk@uhl.nhs.uk or alison.forbes@uhl.nhs.uk Adult Supplemental 3.00 2013-07-22 09:34:41.527 Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Other Non-Motor Outcomes and End Points

Single Pre-Defined Value Selected

CSV