CDE Detailed Report
Disease: NeuroRehab
Subdomain Name: Dysphagia
CRF: Quality of Life in Swallowing Disorders (SWAL-QOL)
Displaying 51 - 66 of 66
Subdomain Name: Dysphagia
CRF: Quality of Life in Swallowing Disorders (SWAL-QOL)
Displaying 51 - 66 of 66
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C10307 | Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem frustrating indicator | SWALQOLSwllwngProbFrstrngInd | Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem frustrates me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how much swallowing problem frustrates the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | My swallowing problem frustrates me. | 1;2;3;4;5 | Always true;Often true;Sometimes true;Hardly ever true;Never true | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10318 | Quality of Life in Swallowing Disorders (SWAL-QOL) - feeling exhausted indicator | SWALQOLFlngExhstdInd | Scale assessing how true the following statement has been for the participant during the last month: Feel exhausted? As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject feels exhausted, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Feel exhausted? | 1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10286 | Quality of Life in Swallowing Disorders (SWAL-QOL) - gagging problem indicator | SWALQOLGagngProbInd | Scale assessing how true the following statement has been for the participant during the last month: Gagging. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject experiences gagging problem, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Gagging | 1;2;3;4;5 | Almost always;Often;Sometimes;Hardly ever;Never | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C17841 | Quality of Life in Swallowing Disorders (SWAL-QOL) - questionnaire general comment text | SWALQOLQuestGenComntTxt | Text regarding the subject's/participant's comments about the Quality of Life in Swallowing Disorders (SWAL-QOL) questionnaire | Text regarding the subject's/participant's comments about the Quality of Life in Swallowing Disorders (SWAL-QOL) questionnair | Comments | Alphanumeric |
Do you have any comments about this questionnaire? We welcome your comments about the questionnaire in general or about specific questions, especially any that were unclear or confusing to you |
No references available | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points | 255 |
Free-Form Entry |
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| C10297 | Quality of Life in Swallowing Disorders (SWAL-QOL) - difficult find food indicator | SWALQOLDifcltFndFdInd | Scale assessing how true the following statement has been for the participant during the last month: It is difficult to find foods that I both like and can eat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates subject feels finding food that subject both like and can eat is difficult, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | It is difficult to find foods that I both like and can eat. | 1;2;3;4;5 | Strongly agree;Agree;Uncertain;Disagree;Strongly disagree | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C18108 | Quality of Life in Swallowing Disorders (SWAL-QOL) - comment text | SWALQOLCmntTxt | Comment from the subject regarding this questionnaire, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Comment from the subject regarding this questionnaire, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Do you have any comments about this questionnaire? We welcome your comments about the questionnaire in general or about specific questions, especially any that were unclear or confusing to you. | Alphanumeric | No references available | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-18 09:11:50.26 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points | 255 |
Free-Form Entry |
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| C10276 | Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem distraction indicator | SWALQOLSwllwProbDistrctnInd | Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem is a major distraction in my life, as part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how distracting swallowing problem is, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | My swallowing problem is a major distraction in my life. | 1;2;3;4;5 | Very much true;Quite a bit true;Somewhat true;A little true;Not at all true | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10308 | Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem impatient problem indicator | SWALQOLSwllwngProbImpttProbInd | Scale assessing how true the following statement has been for the participant during the last month: I get impatient dealing with my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how impatient the subject gets with swallowing problem, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | I get impatient dealing with my swallowing problem. | 1;2;3;4;5 | Always true;Often true;Sometimes true;Hardly ever true;Never true | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10319 | Quality of Life in Swallowing Disorders (SWAL-QOL) - intake feeding tube indicator | SWALQOLIntkFdngTubInd | Scale assessing how true the following statement has been for the participant during the last month: Do you now take any food or liquid through a feeding tube? As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Scale assessing how true the following statement has been for the participant during the last month: Do you now take any food or liquid through a feeding tube? As part of Quality of Life in Swallowing Disorders (SWAL-QOL | Do you now take any food or liquid through a feeding tube? | 1;2 | No;Yes | Numeric Values |
Circle one |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10287 | Quality of Life in Swallowing Disorders (SWAL-QOL) - drooling problem indicator | SWALQOLDrlngProbInd | Scale assessing how true the following statement has been for the participant during the last month: Drooling. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject experiences drooling problem, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Drooling | 1;2;3;4;5 | Almost always;Often;Sometimes;Hardly ever;Never | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C17842 | Quality of Life in Swallowing Disorders (SWAL-QOL) - racial ethnic type | SWALQOLRacEthnicTyp | Race or ethnicity of the subject/participant | Race or ethnicity of the subject/participan | What is your main racial or ethnic group? | 1;2;3;4;5 | White or Caucasian, but not Hispanic or Latino;Black or African-American, but not Hispanic or Latino;Hispanic or Latino;Asian;Other | Numeric Values |
circle one |
No references available | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10298 | Quality of Life in Swallowing Disorders (SWAL-QOL) - people hard understanding problem indicator | SWALQOLPplHrdUndstndProbInd | Scale assessing how true the following statement has been for the participant during the last month: People have a hard time understanding me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates subject feels that people have a hard time understanding, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | People have a hard time understanding me. | 1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10277 | Quality of Life in Swallowing Disorders (SWAL-QOL) - eating importance indicator | SWALQOLEatngImprtncInd | Scale assessing how true the following statement has been for the participant during the last month: Most days, I don't care if I eat or not, as part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how much the subject cares about eating, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Most days, I don't care if I eat or not. | 1;2;3;4;5 | Very much true;Quite a bit true;Somewhat true;A little true;Not at all true | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10309 | Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem not go out indicator | SWALQOLSwllwngProbNtGoOtInd | Scale assessing how true the following statement has been for the participant during the last month: I do not go out to eat because of my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates subject doesn't go out to eat because of swallowing problem, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | I do not go out to eat because of my swallowing problem. | 1;2;3;4;5 | Strongly agree;Agree;Uncertain;Disagree;Strongly disagree | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10320 | Quality of Life in Swallowing Disorders (SWAL-QOL) - consistency texture food indicator | SWALQOLConsstncyTxtrFdInd | Category of consistency or texture of the food the participant has been eating most often in the last week. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates consistency or texture of the food subject has been eating in the last week, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Please circle the letter of the one description below that best describes the consistency or texture of the food you have been eating most often in the last week. | A;B;C;D;E | A;B;C;D;E | Alphanumeric |
Choose only one |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19499 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10288 | Quality of Life in Swallowing Disorders (SWAL-QOL) - chewing problem indicator | SWALQOLChewngProbInd | Scale assessing how true the following statement has been for the participant during the last month: Problems Chewing. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject experiences problem with chewing, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Problems Chewing | 1;2;3;4;5 | Almost always;Often;Sometimes;Hardly ever;Never | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
