CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 151 - 175 of 57855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1115-C14598	C14598	EEG participant alarm push ability indicator	Whether the participant/subject is able to push the alarm at the onset of the seizure, during the seizure, or after the seizure	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1164-C13522	C13522	Monocular visual loss status	Whether the participant/subject has monocular visual loss at bedside assessment	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F2203-C14543	C14543	Genetic disorder type	Whether the participant/subject has a known single gene disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1157-C11085	C11085	Developmental and academic history indicator	Whether the participant/subject has a history of the specific aspect of the pre-morbid developmental status or academic function	Supplemental	Prior Functional Status	False	Stroke	Stroke
F0928-C10503	C10503	Neonatal problems indicator	Whether the participant/subject has a history of problems as an infant during the first month after birth	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10504	C10504	Impaired physical ability during infancy indicator	Whether the participant/subject has a history of impaired physical abilities during infancy	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10505	C10505	Delayed motor milestones indicator	Whether the participant/subject has a history of delayed motor milestones. If participant had delayed motor milestones, indicate type of delayed motor milestones	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F1512-C18254	C18254	Medical history assessment indicator	Whether the participant/subject has a history of any medical problems/conditions	Supplemental-Highly Recommended	Medical History	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1867-C18254	C18254	Medical history assessment indicator	Whether the participant/subject has a history of any medical problems/conditions	Supplemental	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1143-C14115	C14115	Family history sinistrality indicator	Whether the participant/subject has a family history of sinistrality, or left-handedness/preference for using the left hand	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1280-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F2621-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Social Status	False	Headache	Headache
F1143-C10479	C10479	School special accommodation indicator	Whether the participant/subject ever received special accommodations for school coursework	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1280-C17446	C17446	Clinical event or milestone walk indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of walking by 17 months old which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C17444	C17444	Clinical event or milestone 2 year word combination indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking in two word combinations by 2 years which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C17445	C17445	Clinical event or milestone 3 year sentence indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking in complete sentences by 3 years which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C17443	C17443	Clinical event or milestone 1 year speech indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking his/her first words by 12 months which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C17441	C17441	Clinical event or milestone cognitive learning disability indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of having a cognitive/learning disability which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C17442	C17442	Clinical event or milestone day care indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of attending a day care group (with > 5 other children) which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1178-C14633	C14633	Extracranial venous thromboembolism indicator	Whether the participant/ subject was diagnosed with an extracranial venous thromboembolism (VTE)	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1230-C14940	C14940	Cytosine adenine guanine repeat known indicator	Whether the participant's/subject's Cytosine Adenine Guanine (CAG) repeat lengths are known	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1106-C14444	C14444	Muscle tone assessment abnormality indicator	Whether the muscle tone assessment found any abnormalities	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F2291-C14444	C14444	Muscle tone assessment abnormality indicator	Whether the muscle tone assessment found any abnormalities	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2365-C14444	C14444	Muscle tone assessment abnormality indicator	Whether the muscle tone assessment found any abnormalities	Supplemental	Neurological Exam	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.