CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 57855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59016 Imaging metabolite quantification procedure phantom data reference acquire indicator

Whether the phantom data was acquired for reference

Supplemental Magnetic Resonance Spectroscopy (MRS) Headache Headache
C12308 Pulmonary function test bronchodilator indicator

Whether the patient was taking bronchodilator during the time of testing

Supplemental Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12308 Pulmonary function test bronchodilator indicator

Whether the patient was taking bronchodilator during the time of testing

Supplemental Pulmonary Function Testing Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12308 Pulmonary function test bronchodilator indicator

Whether the patient was taking bronchodilator during the time of testing

Supplemental Pulmonary Function Testing Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12308 Pulmonary function test bronchodilator indicator

Whether the patient was taking bronchodilator during the time of testing

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12308 Pulmonary function test bronchodilator indicator

Whether the patient was taking bronchodilator during the time of testing

Core Pulmonary Function Testing Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12308 Pulmonary function test bronchodilator indicator

Whether the patient was taking bronchodilator during the time of testing

Supplemental Pulmonary Function Testing Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12308 Pulmonary function test bronchodilator indicator

Whether the patient was taking bronchodilator during the time of testing

Supplemental Pulmonary Function Testing Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C52536 Hospital other transfer indicator

Whether the partici[ant/subject was transferred from another hospital

Supplemental Clinical Presentation Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12672 Surgical or therapeutic procedure ventilated indicator

Whether the participant/subject was ventilated during the surgical or therapeutic procedure

Supplemental Surgical History Myasthenia Gravis Myasthenia Gravis (MG)
C12672 Surgical or therapeutic procedure ventilated indicator

Whether the participant/subject was ventilated during the surgical or therapeutic procedure

Supplemental Surgical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12672 Surgical or therapeutic procedure ventilated indicator

Whether the participant/subject was ventilated during the surgical or therapeutic procedure

Supplemental Surgical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C05405 Hospital presentation type

Whether the participant/subject was taken directly from the scene of accident to the study hospital (primary) or was first taken to a non-study hospital, and then transferred to the study hospital (secondary)

Supplemental Injury Presentation - Early/Late Traumatic Brain Injury Comprehensive
C05405 Hospital presentation type

Whether the participant/subject was taken directly from the scene of accident to the study hospital (primary) or was first taken to a non-study hospital, and then transferred to the study hospital (secondary)

Supplemental Injury Presentation - Early/Late Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C05405 Hospital presentation type

Whether the participant/subject was taken directly from the scene of accident to the study hospital (primary) or was first taken to a non-study hospital, and then transferred to the study hospital (secondary)

Supplemental Injury Presentation - Early/Late Traumatic Brain Injury Acute Hospitalized
C05405 Hospital presentation type

Whether the participant/subject was taken directly from the scene of accident to the study hospital (primary) or was first taken to a non-study hospital, and then transferred to the study hospital (secondary)

Supplemental Injury Presentation - Early/Late Traumatic Brain Injury Epidemiology
C05405 Hospital presentation type

Whether the participant/subject was taken directly from the scene of accident to the study hospital (primary) or was first taken to a non-study hospital, and then transferred to the study hospital (secondary)

Supplemental Injury Presentation - Early/Late Traumatic Brain Injury Concussion/Mild TBI
C22609 Communication device new provide indicator

Whether the participant/subject was provided with new communication device (i.e., touch screen)

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C22609 Communication device new provide indicator

Whether the participant/subject was provided with new communication device (i.e., touch screen)

NeuroRehab Supplemental-Highly Recommended Devices: Communication NeuroRehab NeuroRehab Comprehensive
C22609 Communication device new provide indicator

Whether the participant/subject was provided with new communication device (i.e., touch screen)

NeuroRehab Supplemental-Highly Recommended Devices: Communication NeuroRehab NeuroRehab General
C14116 Learning disability or attention deficit diagnosis indicator

Whether the participant/subject was ever given formal diagnosis of any learning disability or diagnosed with ADD/ADHD (Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder)

Supplemental Neuropsychological Testing Background Information Epilepsy Epilepsy
C14116 Learning disability or attention deficit diagnosis indicator

Whether the participant/subject was ever given formal diagnosis of any learning disability or diagnosed with ADD/ADHD (Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder)

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12682 Orthosis use indicator

Whether the participant/subject uses orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

Supplemental External Devices - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12682 Orthosis use indicator

Whether the participant/subject uses orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

Supplemental External Devices and Other Treatments Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12682 Orthosis use indicator

Whether the participant/subject uses orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
Displaying 101 - 125 of 57855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.