CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Disease Name

Sub Domain Name

CRF Name

Displaying 83751 - 83775 of 83926

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C09936	World Health Organization Quality of Life (WHOQOL-BREF) - concentration scale	Scale used to assess concentration ability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Mitochondrial Disease	Mitochondrial Disease
C09936	World Health Organization Quality of Life (WHOQOL-BREF) - concentration scale	Scale used to assess concentration ability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Parkinson's Disease	Parkinson's Disease
C09936	World Health Organization Quality of Life (WHOQOL-BREF) - concentration scale	Scale used to assess concentration ability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Spinal Cord Injury	Spinal Cord Injury
C09936	World Health Organization Quality of Life (WHOQOL-BREF) - concentration scale	Scale used to assess concentration ability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
C09936	World Health Organization Quality of Life (WHOQOL-BREF) - concentration scale	Scale used to assess concentration ability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
C09939	World Health Organization Quality of Life (WHOQOL-BREF) - energy daily scale	Scale used to assess whether the participant has enough energy for daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09939	World Health Organization Quality of Life (WHOQOL-BREF) - energy daily scale	Scale used to assess whether the participant has enough energy for daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Mitochondrial Disease	Mitochondrial Disease
C09939	World Health Organization Quality of Life (WHOQOL-BREF) - energy daily scale	Scale used to assess whether the participant has enough energy for daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Parkinson's Disease	Parkinson's Disease
C09939	World Health Organization Quality of Life (WHOQOL-BREF) - energy daily scale	Scale used to assess whether the participant has enough energy for daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Spinal Cord Injury	Spinal Cord Injury
C09939	World Health Organization Quality of Life (WHOQOL-BREF) - energy daily scale	Scale used to assess whether the participant has enough energy for daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
C09939	World Health Organization Quality of Life (WHOQOL-BREF) - energy daily scale	Scale used to assess whether the participant has enough energy for daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
C09934	World Health Organization Quality of Life (WHOQOL-BREF) - enjoy life scale	Scale used to assess life enjoyment, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09934	World Health Organization Quality of Life (WHOQOL-BREF) - enjoy life scale	Scale used to assess life enjoyment, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Mitochondrial Disease	Mitochondrial Disease
C09934	World Health Organization Quality of Life (WHOQOL-BREF) - enjoy life scale	Scale used to assess life enjoyment, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Parkinson's Disease	Parkinson's Disease
C09934	World Health Organization Quality of Life (WHOQOL-BREF) - enjoy life scale	Scale used to assess life enjoyment, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Spinal Cord Injury	Spinal Cord Injury
C09934	World Health Organization Quality of Life (WHOQOL-BREF) - enjoy life scale	Scale used to assess life enjoyment, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
C09934	World Health Organization Quality of Life (WHOQOL-BREF) - enjoy life scale	Scale used to assess life enjoyment, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
C09941	World Health Organization Quality of Life (WHOQOL-BREF) - enough money scale	Scale used to assess financial stability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09941	World Health Organization Quality of Life (WHOQOL-BREF) - enough money scale	Scale used to assess financial stability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Mitochondrial Disease	Mitochondrial Disease
C09941	World Health Organization Quality of Life (WHOQOL-BREF) - enough money scale	Scale used to assess financial stability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Parkinson's Disease	Parkinson's Disease
C09941	World Health Organization Quality of Life (WHOQOL-BREF) - enough money scale	Scale used to assess financial stability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Spinal Cord Injury	Spinal Cord Injury
C09941	World Health Organization Quality of Life (WHOQOL-BREF) - enough money scale	Scale used to assess financial stability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
C09941	World Health Organization Quality of Life (WHOQOL-BREF) - enough money scale	Scale used to assess financial stability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
C09956	World Health Organization Quality of Life (WHOQOL-BREF) - form assistance indicator	Indicator of whether someone helped the participant filled out the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09956	World Health Organization Quality of Life (WHOQOL-BREF) - form assistance indicator	Indicator of whether someone helped the participant filled out the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Mitochondrial Disease	Mitochondrial Disease

Displaying 83751 - 83775 of 83926

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.