CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 476 - 500 of 57855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10514 Genetic diagnosis point mutation result

The result of the genetic testing revealed a point mutation describe the position and amino acid change

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10515 Scoliosis diagnosis indicator

The indicator of whether the participant/subject has been diagnosed with scoliosis

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10522 Speech affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's speech

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10524 Ambulation affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's ambulatory ability

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C18802 Symptom first experienced other text

The free-text field related to 'Symptom first experienced text' specifying other text. First symptom of the disease/disorder experienced by the participant/subject

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Core Physical Examination False Friedreich's Ataxia Friedreich's Ataxia
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

 Core Vital Signs False Friedreich's Ataxia Friedreich's Ataxia
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

 Core Vital Signs False Friedreich's Ataxia Friedreich's Ataxia
C01700 Specimen accession number

Number with which the specimen taken for the tests being reported was accessioned to the record storage facility

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C01706 Lab test result text

Result of the laboratory test

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C01707 Lab test abnormality significance type

Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C58709 Lab test abnormality result too high too low indicator

Indication of lab panel test result, either too high or too low

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C58710 Frataxin level status

Level of frataxin

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C58711 GAA repeat expansion mutation size text

Text field for identifying the GAA repeat-expansion mutation

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

 Core Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

 Core Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

 Core Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

 Core Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C10698 Walking ability status

Status that reflects the participant's/subject's current ability to walk

 Core Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C58685 Patient ambulatory status

Status indicating whether the patient is ambulatory or not

 Core Cardiac End Points False Friedreich's Ataxia Friedreich's Ataxia
Displaying 476 - 500 of 57855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.