CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1211-C08113	C08113	Born prematurely indicator	Indicator of whether the participant was informed by a physician or family member that they were born prematurely	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F2361-C08113	C08113	Born prematurely indicator	Indicator of whether the participant was informed by a physician or family member that they were born prematurely	Supplemental	Personal Medical History	False	Sport-Related Concussion	Comprehensive
F2361-C08113	C08113	Born prematurely indicator	Indicator of whether the participant was informed by a physician or family member that they were born prematurely	Supplemental	Personal Medical History	False	Sport-Related Concussion	Acute
F2361-C08113	C08113	Born prematurely indicator	Indicator of whether the participant was informed by a physician or family member that they were born prematurely	Supplemental	Personal Medical History	False	Sport-Related Concussion	Persistent/Chronic
F2361-C08113	C08113	Born prematurely indicator	Indicator of whether the participant was informed by a physician or family member that they were born prematurely	Supplemental	Personal Medical History	False	Sport-Related Concussion	Subacute
F2945-C08113	C08113	Born prematurely indicator	Indicator of whether the participant was informed by a physician or family member that they were born prematurely	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F1014-C10172	C10172	Forced vital capacity result value	Value of the Forced Vital Capacity (FVC), in liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation	Core	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1014-C10173	C10173	Forced expiratory volume second result value	Value of the amount of air, in liters, that can be blown in the first second in the Forced Expiratory Volume maneuver (FEV1)	Supplemental	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2148-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2160-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2352-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Exploratory	Headache Pain	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2673-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2949-C19529	C19529	Motor symptom parkinsonian initial type ambulatory axial difficulty abnormal posture gait other text	The free-text field related to 'Motor symptom parkinsonian initial type', specifying ambulatory/axial difficulties-other abnormality of posture or gait other text. Type(s) of initial motor symptoms of Parkinson's disease described by the participant/subject.	Supplemental	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
F3048-C10172	C10172	Forced vital capacity result value	Value of the Forced Vital Capacity (FVC), in liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F3048-C10173	C10173	Forced expiratory volume second result value	Value of the amount of air, in liters, that can be blown in the first second in the Forced Expiratory Volume maneuver (FEV1)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F3059-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3134-C10172	C10172	Forced vital capacity result value	Value of the Forced Vital Capacity (FVC), in liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation	Supplemental-Highly Recommended	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F3134-C10173	C10173	Forced expiratory volume second result value	Value of the amount of air, in liters, that can be blown in the first second in the Forced Expiratory Volume maneuver (FEV1)	Supplemental-Highly Recommended	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F0011-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0011-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0011-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0013-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant is ongoing	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0025-C01705	C01705	Lab test name	Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions	Supplemental	Laboratory Tests and Tracking	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.