CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C60332	C60332	Mitochondrial disease symptom prompt check pancreatitis text	The free-text field specifying what symptoms prompted the participant's medical team to check for pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60331	C60331	Mitochondrial disease pancreas insufficiency indicator	Indicator of whether the participant had pancreatic insufficiency	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60330	C60330	Mitochondrial disease chronic pancreatitis indicator	Indicator of whether the participant had chronic pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60329	C60329	Mitochondrial disease recurrent acute pancreatitis indicator	Indicator of whether the participant had recurrent acute pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60328	C60328	Mitochondrial disease acute pancreatitis indicator	Indicator of whether the participant had acute pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60327	C60327	Mitochondrial disease total pancreatitis episodes number	Total number of pancreatitis episodes the participant experienced	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60326	C60326	Mitochondrial disease last pancreatitis episode age value	Value for the participant's age at the last pancreatitis episode	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60325	C60325	Mitochondrial disease first pancreatitis episode age value	Value for the participant's age at the first pancreatitis episode	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60324	C60324	Mitochondrial disease pancreatitis episodes duration text	The free-text field to specify the duration of the participant's pancreatitis episodes occurred	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60323	C60323	Mitochondrial disease pancreatitis episodes occur text	The free-text field to specify the amount of time that has elapsed since the participant's episodes have occurred	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60322	C60322	Mitochondrial disease pancreatitis episode type	Type of pancreatitis episodes experienced by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60321	C60321	Mitochondrial disease pancreatic diagnose indicator	Indicator of whether the participant has been diagnosed with pancreatic disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60320	C60320	Mitochondrial disease bowel movements current medication type other text	The free-text field related to 'Mitochondrial disease bowel movements current medication type', specifying other text. Type of other medications that the participant is currently taking to help with bowel movements	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60319	C60319	Mitochondrial disease prior abdominal pain trigger type other text	The free-text field related to 'Mitochondrial disease prior abdominal pain trigger type', specifying other text. Type of trigger of the participant's prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60318	C60318	Mitochondrial disease prior abdominal pain reason other text	The free-text field related to 'Mitochondrial disease prior abdominal pain reason', specifying other text. Reason describing the past indication that the participant experienced abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60317	C60317	Mitochondrial disease current abdominal pain trigger type other text	The free-text field related to 'Mitochondrial disease current abdominal pain trigger type', specifying other text. Type of trigger of the participant's current abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60316	C60316	Mitochondrial disease fiberoptic endoscopic evaluation of swallowing indicator	Indicator of whether the participant has had a fiberoptic endoscopic evaluation of swallowing (FEES) procedure	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60315	C60315	Mitochondrial disease swallow center feed therapist recommendation type	Type of recommendation the participant received from the feeding and swallowing center or feeding therapist evaluation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60314	C60314	Mitochondrial disease swallow center feed therapist indicator	Indicator of whether the participant has been evaluated for a feeding and swallowing center or feeding therapist	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60313	C60313	Mitochondrial disease swallow study result type	Type of result the participant's swallowing study revealed	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60312	C60312	Mitochondrial disease swallow study indicator	Indicator of whether the participant has undergone a swallowing study	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60311	C60311	Mitochondrial disease dysphagia diagnosis type	Type of dysphagia diagnosis the participant received	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60310	C60310	Mitochondrial disease voice change eating indicator	Indicator of whether the participant has a change in voice while eating	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60309	C60309	Mitochondrial disease drool indicator	Indicator of whether the participant drools	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60308	C60308	Mitochondrial disease difficult breath eat indicator	Indicator of whether the participant has difficulty breathing while eating	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.