CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 1 - 25 of 57855

1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0009-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Events	False	General (For all diseases)	General (For all diseases)
F0009-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0318-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Vital Signs and Blood Gases	False	Traumatic Brain Injury	Comprehensive
F0318-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Vital Signs and Blood Gases	False	Traumatic Brain Injury	Acute Hospitalized
F0318-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Vital Signs and Blood Gases	False	Traumatic Brain Injury	Epidemiology
F0318-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Vital Signs and Blood Gases	False	Traumatic Brain Injury	Concussion/Mild TBI
F0318-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Vital Signs and Blood Gases	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0334-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Intraoperative Management	False	Traumatic Brain Injury	Comprehensive
F0334-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Intraoperative Management	False	Traumatic Brain Injury	Acute Hospitalized
F0334-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Intraoperative Management	False	Traumatic Brain Injury	Epidemiology
F0334-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Intraoperative Management	False	Traumatic Brain Injury	Concussion/Mild TBI
F0334-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Intraoperative Management	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F1126-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1165-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Vital Signs	False	Stroke	Stroke
F2349-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2349-C54654	C54654	Partial pressure oxygen brain tissue under threshold duration	Length of time the measurement of oxygen dissolved in the brain tissue (PbtO2) is under the threshold	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2377-C01558	C01558	Partial pressure oxygen brain tissue measurement	Measurement of how much oxygen is dissolved in the brain tissue (PbtO2)	Supplemental	Vital Signs and Blood Gases	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2948-C08003	C08003	Family history relative type Parkinsons disease parkinsonism member count	Count of family members and ancestors, for the specified relative type, with Parkinson's disease (PD) or Parkinsonism	Core	Family History	False	Parkinson's Disease	Parkinson's Disease
F2949-C08009	C08009	Diagnostic feature criterion presence status	Status of diagnostic feature or criterion observed during clinical assessment of the participant/subject	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
F2952-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F1515-C00311	C00311	Birth weight report value	Birth weight according to the participant's medical report or reported by the parent or legal guardian	Supplemental	Vital Signs	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F2940-C00311	C00311	Birth weight report value	Birth weight according to the participant's medical report or reported by the parent or legal guardian	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab Comprehensive
F2940-C00311	C00311	Birth weight report value	Birth weight according to the participant's medical report or reported by the parent or legal guardian	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab General
F2945-C00311	C00311	Birth weight report value	Birth weight according to the participant's medical report or reported by the parent or legal guardian	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F3085-C00311	C00311	Birth weight report value	Birth weight according to the participant's medical report or reported by the parent or legal guardian	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1 - 25 of 57855

1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.