CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1100-C18732	C18732	Language primary other text	The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often	Supplemental	Demographics	False	Epilepsy	Epilepsy
F1101-C18677	C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Epilepsy	Epilepsy
F1103-C14426	C14426	Epilepsy etiology primary type	Primary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible)	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C14427	C14427	Epilepsy etiology secondary type	Secondary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible)	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58580	C58580	Specific epilepsy etiology classification type	The categorization for etiology of epilepsy as linked to identified genetic or presumed genetic, structural, metabolic, immune, infectious or unknown causes. Genetic (or presumed) causes of epilepsy are understood to be the direct result of a known or presumed genetic defect(s) in which seizures are the core symptom of the disorder. Unknown cause is meant to be taken neutrally and to designate that the nature of the underlying cause is not yet unknown. Structural, metabolic, immune or infectious causes are due to a distinct condition that has been associated with substantially increased risk of developing epilepsy as demonstrated in appropriately designed studies	Core	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58582	C58582	Genetic presumed genetic epilepsy etiology type	The categorization for genetic or presumed genetic etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58587	C58587	Structural epilepsy etiology type	The categorization for structural etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58605	C58605	Metabolic toxic epilepsy etiology type	The categorization for metabolic toxic etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58606	C58606	Other epilepsy etiology type	The categorization for other etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1104-C14485	C14485	Epilepsy syndromes distinct confidence level type	Confidence level that the two or more epilepsy syndromes selected as present are distinct syndromes	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1105-C14429	C14429	Global change since prior examination result	Global assessment of the difference between the prior and follow-up examinations	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1105-C14430	C14430	Tanner stage	Stages of physical development in children, adolescents and adults. The scale defines physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1105-C18931	C18931	Global change since prior examination other text	The free-text field related to 'Global change since prior examination result' specifying other text. Global assessment of the difference between the prior and follow-up examinations	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1106-C14429	C14429	Global change since prior examination result	Global assessment of the difference between the prior and follow-up examinations	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14431	C14431	Mental status examined type	Type of mental status assessment performed	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14432	C14432	Mental status exam abnormality indicator	Whether the mental assessment showed abnormal results	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14433	C14433	Cranial nerves global assessment result	The condition of Cranial Nerves	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14435	C14435	Nystagmus indicator	Involuntary movements of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14436	C14436	Nystagmus type	Type of involuntary movement of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14437	C14437	Motor exam global assessment type	Type of global assessment for the motor exam	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14454	C14454	Cerebellar or coordination assessment type	Type of cerebellar/coordination assessment performed	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14460	C14460	Reflex assessment anatomic site	The location or category for reflex assessment of limbs	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14461	C14461	Reflex assessment limb result	The results from reflex limb assessment	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14462	C14462	Reflex plantar right response result	The results from reflex plantar response on the right side	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14463	C14463	Reflex plantar left response result	The results from reflex plantar response on the left side	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.