CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2955-C59077	C59077	Genetic test result participant inform source type	Type of source that informed the participant of the genetic test results	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C59141	C59141	Genetic study data sequencing category type	Type of sequencing category data expected for the genetics study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F3064-C10570	C10570	Imaging contrast agent used indicator	Indicator of whether an imaging contrast agent was used for the scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3064-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F3085-C20004	C20004	Hypoglycemia diagnosis type	The type related to having concern or diagnosis of hypoglycemia or low blood sugar	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C10981	C10981	Birth control method type	The participant's method of birth control	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16169	C16169	Pregnancy outcome type	Type of outcome of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16178	C16178	Post-menopausal cause type	Type of cause or reason for the post-menopausal period in the participant	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C08240	C08240	Imaging flip angle measurement	Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C15580	C15580	Imaging acquisition type	Type of imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C20247	C20247	Imaging scanner model name text	The free-text field related to name of model of imaging scanner	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20328	C20328	Mitochondrial disease bowel movements current medication type	Type of medications that the participant is currently taking for help with bowel movements	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19582	C19582	Tanner stage pubic hair scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the development of pubic hair to characterize stages of physical development in children, adolescents and adults	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19583	C19583	Tanner stage genitalia scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts and genitalia to characterize stages of physical development in children, adolescents and adults	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19616	C19616	Length standard infant use type	Indicator of whether WHO or CDC growth charts were used in length Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19618	C19618	Height standard infant use type	Indicator of whether WHO or CDC growth charts were used in height Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19620	C19620	Weight length standard infant use type	Indicator of whether WHO or CDC growth charts were used in weight/length Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19621	C19621	BMI Z score	The number of standard deviations the calculated BMI of the participant is above the mean	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19622	C19622	BMI standard infant use type	Indicator of whether WHO or CDC growth charts were used in BMI Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19625	C19625	Head circumference standard infant use type	Indicator of whether WHO or CDC growth charts were used in head circumference Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.