CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2786-C58340	C58340	Title description of current or last job text	Free text field to identify participants current or last job title and description	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58342	C58342	Never employed indicator	Indicator of whether the participant has never been employed	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58349	C58349	Job highest level category	Category that classifies participant/subjects work highest level	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58362	C58362	Work study hour count	Indicator of how many hours per week the participant/subject works or studies	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58377	C58377	Able work full time last date	Date when participant/subjects was last able to work full time	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58378	C58378	Disability situation description indicator	Description of participant/subjects disability situation	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58380	C58380	Disability benefits receiving indicator	Indicator of the type of disability benefits the participant/subject is receiving	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58381	C58381	Applying for disability benefits indicator	Indicator of whether the participant/subject is applying for disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58382	C58382	Receiving disability for ME/CFS another condition both indicator	Indicator if the participant/subject is receiving disability for ME/CFS or for another condition	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58384	C58384	Past apply disability benefits turned down indicator	Indicator of whether the participant/subject has been turned down in the past for disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58385	C58385	Other current situation type text	Specifies other current situation	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58386	C58386	Other disability benefits type text	Specifies other disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58387	C58387	Other description of highest level job type text	Specifies other highest level job	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58388	C58388	Other current or last job type text	Specifies other current or last job	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58391	C58391	Other condition disability type text	Specifies other condition	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58392	C58392	Other times turned down count	Specifies number of other times turned down for disability benefits	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2786-C58393	C58393	Highest grade degree completed type	Indicates the highest grade or degree the subject/participant has completed	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1126-C02300	C02300	Adverse event study intervention action taken type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02301	C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02303	C02303	Adverse event outcome status	Final status of the participant/subject related to the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02304	C02304	Adverse event relatedness scale	Scale of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02306	C02306	Adverse event start date and time	Date (and time, if applicable and known) on which the adverse event was first evident	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02307	C02307	Adverse event verbatim term text	Text that describes the adverse event word for word as described by the participant/subject	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02308	C02308	Adverse event during study indicator	Indicator of whether the participant/subject experienced any adverse events during the study	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.