CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2901-C09931	C09931	World Health Organization Quality of Life (WHOQOL-BREF) - health satisfaction scale	Scale used to assess health satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09953	C09953	World Health Organization Quality of Life (WHOQOL-BREF) - health access scale	Scale used to assess satisfaction with health services access, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
F2901-C09953	C09953	World Health Organization Quality of Life (WHOQOL-BREF) - health access scale	Scale used to assess satisfaction with health services access, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09944	C09944	World Health Organization Quality of Life (WHOQOL-BREF) - get around scale	Scale used to assess the ability of the participant to get around, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
F2901-C09944	C09944	World Health Organization Quality of Life (WHOQOL-BREF) - get around scale	Scale used to assess the ability of the participant to get around, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09951	C09951	World Health Organization Quality of Life (WHOQOL-BREF) - friend support scale	Scale used to assess family support satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
F2901-C09951	C09951	World Health Organization Quality of Life (WHOQOL-BREF) - friend support scale	Scale used to assess family support satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09956	C09956	World Health Organization Quality of Life (WHOQOL-BREF) - form assistance indicator	Indicator of whether someone helped the participant filled out the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
F2901-C09956	C09956	World Health Organization Quality of Life (WHOQOL-BREF) - form assistance indicator	Indicator of whether someone helped the participant filled out the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09941	C09941	World Health Organization Quality of Life (WHOQOL-BREF) - enough money scale	Scale used to assess financial stability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
F2901-C09941	C09941	World Health Organization Quality of Life (WHOQOL-BREF) - enough money scale	Scale used to assess financial stability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09934	C09934	World Health Organization Quality of Life (WHOQOL-BREF) - enjoy life scale	Scale used to assess life enjoyment, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
F2901-C09934	C09934	World Health Organization Quality of Life (WHOQOL-BREF) - enjoy life scale	Scale used to assess life enjoyment, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09939	C09939	World Health Organization Quality of Life (WHOQOL-BREF) - energy daily scale	Scale used to assess whether the participant has enough energy for daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
F2901-C09939	C09939	World Health Organization Quality of Life (WHOQOL-BREF) - energy daily scale	Scale used to assess whether the participant has enough energy for daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09936	C09936	World Health Organization Quality of Life (WHOQOL-BREF) - concentration scale	Scale used to assess concentration ability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
F2901-C09936	C09936	World Health Organization Quality of Life (WHOQOL-BREF) - concentration scale	Scale used to assess concentration ability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09940	C09940	World Health Organization Quality of Life (WHOQOL-BREF) - body appearance acceptance scale	Scale used to assess bodily appearance acceptance, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
F2901-C09940	C09940	World Health Organization Quality of Life (WHOQOL-BREF) - body appearance acceptance scale	Scale used to assess bodily appearance acceptance, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09948	C09948	World Health Organization Quality of Life (WHOQOL-BREF) - ability satisfaction scale	Scale used to assess ability satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
F2901-C09948	C09948	World Health Organization Quality of Life (WHOQOL-BREF) - ability satisfaction scale	Scale used to assess ability satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2901-C09946	C09946	World Health Organization Quality of Life (WHOQOL-BREF) - ability perform daily scale	Scale used to assess how satisfied the participant is with his ability to perform daily living activities, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
F2901-C09946	C09946	World Health Organization Quality of Life (WHOQOL-BREF) - ability perform daily scale	Scale used to assess how satisfied the participant is with his ability to perform daily living activities, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F1162-C14256	C14256	World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale	World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2348-C14256	C14256	World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale	World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale	Core	Clinical Presentation	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.