CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2759-C58037	C58037	Abdomen bowel sounds assessment status	The status of abdomen bowel sounds assessment in physical examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C58039	C58039	Abdomen masses assessment indicator	The indicator of abdomen masses assessment in physical examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2145-C21777	C21777	Abdomen soft non tender indicator	The indicator related to identifying a soft and non tender abdomen	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21779	C21779	Abdomen soft non tender text	The free text field related to identifying a soft and non-tender abdomen	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2759-C58040	C58040	Abdomen summary assessment status	The status of summary abdomen assessment in physical examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C58038	C58038	Abdomen tenderness assessment indicator	The indicator of abdomen tenderness assessment in physical examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C58035	C58035	Abdominal artery auscultation assessment status	The status of abdominal artery auscultation (bruit) assessment in physical examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F0823-C06215	C06215	Abdominal bloating frequency	The frequency of abdominal bloating within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06216	C06216	Abdominal pain discomfort frequency	The frequency of abdominal pain/discomfort within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53074	C53074	Abdominal pain discomfort last four week average frequency	The average frequency of abdominal pain/discomfort within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2786-C58377	C58377	Able work full time last date	Date when participant/subjects was last able to work full time	Supplemental-Highly Recommended	Adult Employment and Education History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2758-C57967	C57967	Abnormal result date	Date of abnormal result	Supplemental	Laboratory Test Results	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2722-C57203	C57203	Abnormal sweating episode frequency type	The type of frequency pertaining to the subject's abnormal sweating episodes	Supplemental	Neuroendocrine/Hypothalamic Symptoms	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2722-C57201	C57201	Abnormal sweating episode indicator	The indicator relating to whether the subject has abnormal sweating episodes	Supplemental	Neuroendocrine/Hypothalamic Symptoms	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2722-C57202	C57202	Abnormal sweating episode severity status	The status of the severity of the subject's abnormal sweating episodes	Supplemental	Neuroendocrine/Hypothalamic Symptoms	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2722-C57220	C57220	Abnormal unintentional weight gain 6 month status	The status of the severity of the subject's abnormal/unintentional weight gain in the past 6 months	Supplemental	Neuroendocrine/Hypothalamic Symptoms	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2722-C57222	C57222	Abnormal unintentional weight loss 6 month status	The status of the severity of the subject's abnormal/unintentional weight loss in the past 6 months	Supplemental	Neuroendocrine/Hypothalamic Symptoms	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1237-C15109	C15109	Abnormality no diagnosis type	The diagnosis if there is no abnormality recognized	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1171-C13855	C13855	Abscess anatomic site	The free-text field to specify the location of abscess	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13854	C13854	Abscess present indicator	The indicator for presence of abscess	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F0308-C05419	C05419	Abusive head trauma likelihood type	Indicator to the extent of abusive head trauma is determined to be likely	Supplemental	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
F1546-C05419	C05419	Abusive head trauma likelihood type	Indicator to the extent of abusive head trauma is determined to be likely	Basic	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Acute Hospitalized
F1547-C05419	C05419	Abusive head trauma likelihood type	Indicator to the extent of abusive head trauma is determined to be likely	Basic	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Epidemiology
F1548-C05419	C05419	Abusive head trauma likelihood type	Indicator to the extent of abusive head trauma is determined to be likely	Basic	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Concussion/Mild TBI
F1549-C05419	C05419	Abusive head trauma likelihood type	Indicator to the extent of abusive head trauma is determined to be likely	Supplemental	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.