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NINDS CDE Notice of Copyright
Pediatric Quality of Life Inventory: Social Subscale
Availability
Classification
Supplemental for Traumatic Brain Injury (TBI)
Short Description of Instrument
The PedsQL is a 23-item measure that can be used to assess health-related quality of life in children. The measure includes items in the domains of physical, emotional, social and school functioning. Age-appropriate child forms are available between the ages of 5 and 18, and parent proxy forms can be used down to age 2. Respondents indicate how much each item has been a problem in the past month; responses for 8-18 year old children and for parents are rated on a 5-point Likert scale, while younger children rate their responses on a 3-point scale. A total score and two summary scores for physical health and psychosocial health can be calculated.
Scoring
The total score is on a scale from 1-100, with higher scores indicating a higher health- related quality of life. Summary scores and scores for each subscale are computed by averaging the component item responses, and range between 0-4.
The PedsQL is appropriate for children and adolescents ages 2-18 years.
Rationale/Justification
The test can be completed in under  5 minutes. Parents and children 8 years or older may self-administer the PedsQL or the administrator can read the instructions to the child.
“It has been used in pediatric TBI and has been translated into over 48 languages including Spanish.” – McCauley et al. 2012
References
Aitken, M., McCarthy, M., Slomine, B., Ding, R., Durbin, D., Jaffe, K., Paidas, C., Dorsch, A., Christensen, J., and Mackenzie, E. (2009). Family burden after traumatic brain injury in children. Pediatrics 123, 199-206.
Calvert, S., Miller, H., Curran, A., Hameed, B., McCarter, R., Edwards, R., Hunt, L., and Sharples, P. (2008). The King’s outcome scale for childhood head injury and injury severity and outcome measures in children with traumatic brain injury. Developmental Medicine and Child Neurology 50(6), 426-431.
Curran, A., Miller, H., McCarter, R., Sharples, P., and The Kids Head Injury Study Group (2003). Measuring quality of life after traumatic brain injury in children: How does the Health Utilities Index (HUI) compare to the Pediatric Quality of Life measure (PedsQL)? Arch Dis Child 88, A24.
Erickson, S., Montague, E., and Gerstle, M. (2010). Health-related quality of life in children with moderate-to-severe traumatic brain injury. Dev Neurorehabil 13, 175-181.
McCarthy, M. L., MacKenzie, E. J., Durbin, D. R., Aitken, M. E., Jaffe, K. M., Paidas, C. N., Slomine, B. S., Dorsch, A. M., Berk, R. A., Christensen, J. R., and Ding, R. (2005). The Pediatric Quality of Life Inventory: an evaluation of its reliability and validity for children with traumatic brain injury. Arch Phys Med Rehabil 86(10), 1901-1909.
McCarthy, M. L., MacKenzie, E. J., Durbin, D. R., Aitken, M. E., Jaffe, K. M., Paidas, C. N., Slomine, B. S., Dorsch, A. M., Christensen, J. R., and Ding, R. (2006). Health-related quality of life during the first year after traumatic brain injury. Arch Pediatr Adolesc Med 160(3), 252-260.
Moon, R., Sutton, T., Wilson, P., Kirkham, F., and Davies, J. (in press). Pituitary function at long-term follow up of childhood traumatic brain injury. J Neurotrauma.
Slomine, B., McCarthy, M., Ding, R., Mackenzie, E., Jaffe, K., Aitken, M., Durbin, D., Christensen, J., Dorsch, A., and Paidas, C. (2006). Health care utilization and needs after pediatric traumatic brain injury. Pediatrics 117(4), e663-e674.
Varni, J., Burwinkle, T., Seid, M., and Skarr, D. (2003). The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr 3(6), 329- 341.
Varni, J., Seid, M., and Kurtin, P. (2001). PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 39(8), 800-812.
Varni, J., Seid, M., and Rode, C. (1999). The PedsQL: measurement model for the pediatric quality of life inventory. Med Care 37(2), 126-139.
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