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Quality of Life After Brain Injury (QOLIBRI)
Availability
Please visit this website for more information about the instrument: PLEASE CLICK HERE FOR MORE INFORMATION
Classification
Supplemental
Short Description of Instrument
The Quality of Life After Brain Injury (QOLIBRI)is a TBI disease-specific instrument to measure Health Related Quality of Life (HRQoL) after TBI. Its multidimensional structure contains 37 items on 4 Satisfaction scales "Cognition", "Self", "Daily Life & Autonomy", " Relationships", 2 Bothered scales "Emotions" and "Physical Problems" and a total score. For screening purposes there is an additional overall scale available with 6 items.
Translations available in Chinese, Spanish, English, Finnish, French, Italian, German, Dutch, Polish, etc.).
Scoring
The scoring algorithm provides percent scores for the six subscales (with 100% indicating best QoL), and one total score. Higher scores on all scales indicate higher HRQOL after TBI.
Self report, face-to-face interview, 5-10 minutes, available : comprehensive version with 37 items, a screening (6 items), and short version (11 items) and CAT (Computer Adaptive Test) in preparation.
Psychometric Properties
Until now the only disease specific HRQOL-instrument for persons after TBI. Comprehensive outcome tool for clinic outcome studies and individual use. In two international psychometric studies with 921 and 1528 mild-to-severe TBI patients FA, CFA and SEM support a six-scale QOL profile and a total QOL score. Scale internal consistencies and test-retest reliability between 0.75 and 0.89, for total score > .90. Similar reliabilities in groups of participants with lower and higher cognitive performance. Correlations of QOLIBRI-TBI scores and SF-36: higher with SF-36 mental (.60) than SF-36 physical (.40) component, which was expected because of content of QOLIBRI-TBI. Correlation between QOLIBRI-TBI and SWLS (.58), functional outcome (GOSE, 0.40) and (negative) correlations with HADS anxiety (>.55) and depression (>0.65). No or marginal correlation with GCS, age and time since injury (<.10).
References
von Steinbüchel N, Wilson L, Gibbons H, Hawthorne G, Höfer S, Schmidt S, Bullinger M, Maas A, Neugebauer E, Powell J, von Wild K, Zitnay G, Bakx W, Christensen AL, Koskinen S, Sarajuuri J, Formisano R, Sasse N, Truelle JL; QOLIBRI Task Force. Quality of Life after Brain Injury (QOLIBRI): scale development and metric properties. J Neurotrauma. 2010;27(7):1167–1185.
 
von Steinbüchel N, Wilson L, Gibbons H, Hawthorne G, Höfer S, Schmidt S, Bullinger M, Maas A, Neugebauer E, Powell J, von Wild K, Zitnay G, Bakx W, Christensen AL, Koskinen S, Formisano R, Saarajuri J, Sasse N, Truelle JL; QOLIBRI Task Force. Quality of Life after Brain Injury (QOLIBRI): scale validity and correlates of quality of life. J Neurotrauma. 2010;27(7):1157–1165.
 
von Steinbüchel N, Real RGL, Sasse N, Wilson L, Otto C, Mullins R, Behr R, Deinsberger W, Martinez-Olivera R, Puschendorf W, Petereit W, Rohde V, Schmidt H, Sehmisch S, Stürmer KM, von Wild K, Gibbons H. German validation of Quality of Life after Brain Injury (QOLIBRI) assessment and associated factors. PLoS One. 2017;12(5):e0176668.
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