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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Disease: Huntington's Disease
CRF: History of Early Exposure to Huntington's disease
Item count: 23 (23 distinct CDEs)
CDE ID
CDE Name
Definition / Description
Code List / Permissible Values
Definitions for Codes / Permissible Values
Data Type
Instructions
Additional Notes
References
Classification (e.g., Core)
Version #
Version Date
Variable Name
Aliases for Variable Name
CRF Module / Guideline
Sub-Domain
Domain
C08076
Breastfed indicator
Indicator of whether the participant/subject was breastfed by his/her mother
  
Alphanumeric
If No is answered, skip to Sibship/Birth Order section
Did your mother breastfeed you?
No references available
Supplemental
3.0
7/22/2013
BreastfedInd
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08077
Full biological sibling indicator
Indicator of whether the participant/subject has any full biological brothers and/or sisters. Full brothers and/or sisters are defined as those with whom a birth mother and father is shared.
  
Alphanumeric
Please include brothers and sisters who are living or deceased, but do not include adopted, foster, half, or step brothers or sisters
Do you have any full brothers and/or sisters, that is, those with whom you share both birth mother and father?
No references available
Supplemental
3.0
7/22/2013
FullBioSiblingInd
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08078
Full biological sisters number
Number of full biological sisters the participant/subject has
  
Numeric Values
Answer only if previous question was answered Yes and sisters is applicable
How many full sisters do you have?
No references available
Supplemental
3.0
7/22/2013
FullBioSistersNum
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08079
Full biological brothers number
Number of full biological brothers the participant/subject has
  
Numeric Values
Answer only if previous question was answered Yes and brothers is applicable
How many full brothers do you have?
No references available
Supplemental
3.0
7/22/2013
FullBioBrothersNum
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08080
Twin sibling indicator
Indicator of whether the participant/subject has a twin brother or sister
  
Alphanumeric
If No is answered, skip to question #3 - Including yourself, please identify who is the oldest of your siblings?
Do you have a twin brother or sister?
No references available
Supplemental
3.0
7/22/2013
TwinSiblingInd
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08081
Twin sibling type
Type of twin the participant/subject has
  
Alphanumeric
No additional instructions
Are you and your twin identical or not identical?
No references available
Supplemental
3.0
7/22/2013
TwinSiblingTyp
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08082
Sibling rank type
Sibling rank order to identify who is the eldest sibling and the second eldest sibling
  
Alphanumeric
Choose one response
Including yourself, please identify who is the oldest of your siblings?
No references available
Supplemental
3.0
7/22/2013
SiblingRankTyp
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08083
Sibling name
Name of the sibling
  
Alphanumeric
Answer for both eldest and second eldest sibling
Eldest Name; 2nd Eldest Name
No references available
Supplemental
3.0
7/22/2013
SiblingName
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08084
Sibling gender type
Reported gender of the sibling. Gender is the socially constructed identity of sex
  
Alphanumeric
Answer for both eldest and second eldest sibling
Sex
No references available
Supplemental
3.0
7/22/2013
SiblingGenderTyp
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08085
Sibling alive indicator
Indicator of whether the participant's/subject's sibling is still living
  
Alphanumeric
Answer for both eldest and second eldest sibling
Is this brother/sister still living?
No references available
Supplemental
3.0
7/22/2013
SiblingAliveInd
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08086
Sibling current age value
Current age of the living sibling
  
Numeric Values
If Yes is answered for previous question, answer for both eldest and second eldest sibling.
If "Yes," please identify how old this brother/sister is now?
No references available
Supplemental
3.0
7/22/2013
SiblingCurntAgeVal
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08087
Sibling death age value
Age of sibling when he/she died
  
Numeric Values
If No is answered for previous question, answer for both eldest and second eldest sibling.
If "No," please identify how old this brother/sister was when s/he died?
No references available
Supplemental
3.0
7/22/2013
SiblingDeathAgeVal
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08088
Age value unit of measure
Unit of measure used to initially record the age value
  
Alphanumeric
Answer only if oldest brother/sister is dead and age at death was recorded. Choose one unit.
If "No," please identify how old this brother/sister was when s/he died?
No references available
Supplemental
3.0
7/22/2013
AgeValUoM
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08104
Day care attendance indicator
Indicator of whether the participant/subject attended day care outside of the home as a child.
  
Alphanumeric
If No is answered, skip to question #2 - As a child, did you attend preschool?
As a child, did you attend day care outside of your home?
No references available
Supplemental
3.0
7/22/2013
DayCareAttendanceInd
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08105
Day care start date
Date participant/subject first started day care outside of home
  
Date or Date & Time
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
If "Yes," in what year did the child begin and end the first (next) attendance?
ISO 8601 - http://www.iso.org/iso/iso_catalogue.htm
Supplemental
3.0
7/22/2013
DayCareStrtDate
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08106
Day care end date
Date participant/subject ended day care outside of home
  
Date or Date & Time
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
If "Yes," in what year did the child begin and end the first (next) attendance?
ISO 8601 - http://www.iso.org/iso/iso_catalogue.htm
Supplemental
3.0
7/22/2013
DayCareEndDate
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08107
Day care hours per week value
Approximate hours per week the participant/subject attended day care as a child
  
Numeric Values
Answer in hours
About how many hours per week does child attend?
No references available
Supplemental
3.0
7/22/2013
DayCareHoursPerWkVal
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08108
Preschool attendance indicator
Indicator of whether the participant/subject attended preschool as a child
  
Alphanumeric
If No is answered, End Questionnaire
As a child, did you attend preschool?
No references available
Supplemental
3.0
7/22/2013
PreschoolAttendanceInd
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08109
Preschool start date
Date participant/subject first started preschool
  
Date or Date & Time
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
If "Yes," in what year did the child begin and end the first (next) attendance?
ISO 8601 - http://www.iso.org/iso/iso_catalogue.htm
Supplemental
3.0
7/22/2013
PreschlStrtDate
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08110
Preschool end date
Date participant/subject ended preschool
  
Date or Date & Time
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
If "Yes," in what year did the child begin and end the first (next) attendance?
ISO 8601 - http://www.iso.org/iso/iso_catalogue.htm
Supplemental
3.0
7/22/2013
PreschlEndDate
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08111
Preschool hours per week value
Approximate hours per week the participant/subject attended preschool as a child
  
Numeric Values
Answer in hours
About how many hours per week does child attend?
No references available
Supplemental
3.0
7/22/2013
PreschoolHoursPerWkVal
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08112
Birth weight category
Categorization of the participant's/subject's birth weight
  
Alphanumeric
No additional instructions
What best describes your weight at birth?
No references available
Supplemental
3.0
7/22/2013
BirthWgtCat
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
C08113
Born prematurely indicator
Indicator of whether the participant/subject was informed by a physician or parent/guardian that he/she was born prematurely
  
Alphanumeric
No additional instructions
Were you told by a doctor or one of your parents that you were born premature?
No references available
Supplemental
3.0
7/22/2013
BornPrematurInd
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
06-16-2019
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