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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Sub-Domain: General Health History
CRF: Family History
Item count: 8 (8 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C06005
Data collected date and time
DataCollDateTime
Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed.
Date information collected
  
Date or Date & Time
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
No references available
Adult;Pediatric
Core
3.0
7/24/2013
Aliases for variable name not defined
Family History
General Health History
Participant History and Family History
Data collected date and time
 
Free-Form Entry
       
C00721
Family history medical condition indicator
FamHistMedclCondInd
Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event
Has a doctor or other medical professional ever told an immediate family member (i.e., parent, sibling, child) that he/she has or has had the following
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
Choose one based on whether there is a history of the condition in a first degree family member.
No references available
Adult;Pediatric
Supplemental
3.0
7/24/2013
Aliases for variable name not defined
Family History
General Health History
Participant History and Family History
Family history medical condition indicator
 
Single Pre-Defined Value Selected
     
3165788
 
C00720
Family history medical condition type
FamHistMedclCondTyp
Type of medical condition or health related event for which the family history is taken
Condition
  
Alphanumeric
This CDE should be collected along with the "Family history medical condition indicator". Three of the family history condition types are Core for SAH: Stroke family history, Brain aneurysm family history, Subarachnoid hemorrhage family history. The following condiiton types are Exploratory for SAH: Migraine family history, Epilepsy family history, Dementia family history, Abdominal aortic aneurysm family history, Psychiatric illness family history, Multiple miscarriage family history, Bleeding disorder family history, Clotting disorder family history, Sudden death family history, Polycystic kidney disease family history, Multiple endocrine neoplasia type I family history, Ehlers-Danlos Syndrome Type IV family history, Marfan Syndrome family history, Neurofibromatosis family history. The remaining conditions are Supplemental for SAH.
Answer for first and second degree blood relatives.
No references available
Adult;Pediatric
Supplemental
3.0
7/24/2013
Aliases for variable name not defined
Family History
General Health History
Participant History and Family History
Family history medical condition type
 
Multiple Pre-Defined Values Selected
     
3165585
 
C18678
Family history medical condition other text
FamHistMedclCondOTH
The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken
Other, specify
  
Alphanumeric
This CDE should be collected along with the "Family history medical condition indicator."
No references available
Adult;Pediatric
Supplemental
1.0
5/27/2014
Aliases for variable name not defined
Family History
General Health History
Participant History and Family History
 
4000
Free-Form Entry
     
3165585
 
C14145
Family history stroke youngest age value
FamHistStrokYoungAgeVal
If there is a family history of stroke, specify the youngest age an immediate family member (parent, sibling, child) suffered a stroke.
Youngest age immediate family member suffered a stroke
  
Numeric Values
History can be obtained from participant/ subject, family member, friend, or chart/ medical record.

Enter the youngest age to the nearest integer or choose Unknown.
No references available
Adult;Pediatric
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Family History
General Health History
Participant History and Family History
Family history stroke youngest age value
 
Free-Form Entry
0
99
year
    
C52569
Brain aneurysm family member relationship text
brainAneurysmFamMemRelTxt
Specify the relationship(s) that a family member with brain aneurysm(s) has with the subject/participant
If YES, please indicate relationship to patient
  
Alphanumeric
(i.e., grandparents, parents, siblings, children or other member)
No references available
Adult;Pediatric
Supplemental
3.0
7/25/2013
Aliases for variable name not defined
Family History
General Health History
Participant History and Family History
  
Free-Form Entry
       
C52570
Subarachnoid hemorrhage family member relationship text
SAHFamMemRelTxt
Specify the relationship(s) that a family member with subarachnoid hemorrhage has with the subject/participant
If YES, please indicate relationship to patient
  
Alphanumeric
(i.e., grandparents, parents, siblings, children or other member)
No references available
Adult;Pediatric
Supplemental
3.0
7/25/2013
Aliases for variable name not defined
Family History
General Health History
Participant History and Family History
  
Free-Form Entry
       
C14147
Family history coronary artery disease (CAD) youngest age value
FamHistCADYoungAgeVal
If there is a family history of coronary artery disease (CAD), specify the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack
Youngest age immediate family member was diagnosed with condition/ suffered a heart attack
  
Numeric Values
History can be obtained from participant/ subject, family member, friend, or chart/ medical record.

Enter the youngest age to the nearest integer or choose Unknown.
No references available
Adult;Pediatric
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Family History
General Health History
Participant History and Family History
Family history CAD youngest age value
 
Free-Form Entry
0
99
year
    
07-21-2019
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