of0
Export
 
CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Stroke
Sub-Domain: Therapies
CRF: Palliative/Comfort Care and End of Life Issues
Item count: 6 (6 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C14279
Comfort care indicator
ComfortCareInd
Indicates if there is any evidence that the participant's/ subject's care was restricted to "Comfort Measures Only". Commonly referred to as "palliative care" in the medical community and "comfort care" by the general public. Palliative care includes attention to the psychological and spiritual needs of the patient and support for the dying patient and the patient's family.
Was the participant's/subject's care restricted to "Comfort Measures Only"
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
Choose one
Get With The Guidelines (GWTG) Stroke Patient Management Tool Coding Instructions (Updated on 11/4/2009); Paul Coverdell National Acute Stroke Registry
Adult;Pediatric
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Palliative/Comfort Care and End of Life Issues
Therapies
Treatment/Intervention Data
Comfort care indicator
 
Single Pre-Defined Value Selected
       
C14280
Comfort care earliest documentation timepoint type
ComfrtCareEarlistDocTimepntTyp
Timepoint of the earliest documentation of comfort measures only
Earliest documents of "Comfort Measures Only"
Day 1 or 2;Day 3 or after;Timing unclear;ND/UTD;
The earliest day the physician/APN/PA documented comfort measures only was the day of arrival (Day 1) or day after arrival (Day 2).;The earliest day the physician/APN/PA documented comfort measures only was two or more days after arrival day (Day 3+).;There is physician/APN/PA documentation of comfort measures only during this hospital stay, but whether the earliest documentation of comfort measures only was on day 1 or 2 OR after day 2 is unclear.;Not Documented/ Unable To Determine: There is no physician/APN/PA documentation of comfort measures only, or unable to determine from medical record documentation.;
Alphanumeric
Choose one
Get With The Guidelines (GWTG) Stroke Patient Management Tool Coding Instructions (Updated on 11/4/2009); Paul Coverdell National Acute Stroke Registry
Adult;Pediatric
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Palliative/Comfort Care and End of Life Issues
Therapies
Treatment/Intervention Data
Comfort care earliest documentation timepoint type
 
Single Pre-Defined Value Selected
       
C14281
Comfort care measure type
ComfortCareMeasureTyp
Describes the types of comfort care the participant/ subject received
Type(s) of comfort care measures received
Eliminating sources of discomfort;Providing effective pain and symptom management through the use of medications and other therapies;Offering a quiet, private environment that supports the intimate process of dying;Encouraging personal rituals that may honor or celebrate the person dying;Providing support, reassurance, and information about grief, bereavement, and information and guidance about the dying process;Providing spiritual care as desired;Offering food and fluids as the dying person desires and is able to take;Preventing constipation, even if oral intake has been minimal;Positioning at frequent intervals to prevent bedsores;Offering frequent mouth care for discomfort from drying (as tolerated);Instilling artificial tears or eye lubricant for discomfort from drying;Limiting vital signs to respirations (breathing) and temperature (this practice may vary);Stopping medications that are not essential to promoting comfort, including antibiotics;Stopping needle sticks and blood draws, including finger sticks for blood sugar;Removing nonessential equipment that may distract care providers and loved ones from focusing on the one who is dying;Other, specify;
Eliminating sources of discomfort;Providing effective pain and symptom management through the use of medications and other therapies;Offering a quiet, private environment that supports the intimate process of dying;Encouraging personal rituals that may honor or celebrate the person dying;Providing support, reassurance, and information about grief, bereavement, and information and guidance about the dying process;Providing spiritual care as desired;Offering food and fluids as the dying person desires and is able to take;Preventing constipation, even if oral intake has been minimal;Positioning at frequent intervals to prevent bedsores;Offering frequent mouth care for discomfort from drying (as tolerated);Instilling artificial tears or eye lubricant for discomfort from drying;Limiting vital signs to respirations (breathing) and temperature (this practice may vary);Stopping medications that are not essential to promoting comfort, including antibiotics;Stopping needle sticks and blood draws, including finger sticks for blood sugar;Removing nonessential equipment that may distract care providers and loved ones from focusing on the one who is dying (e.g., cardiac monitors, feeding tubes and tube feedings, IV access devices, Foley catheters, etc.);Other, specify;
Alphanumeric
Choose all that apply
Kathleen Moneymaker. Comfort Measures Only. Journal of Palliative Medicine. June 2005, 8(3): 688-688. doi:10.1089/jpm.2005.8.688.
Adult;Pediatric
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Palliative/Comfort Care and End of Life Issues
Therapies
Treatment/Intervention Data
Comfort care measure type
 
Multiple Pre-Defined Values Selected
       
C18912
Comfort care measure other text
ComfortCareMeasureOTH
The free-text field related to 'Comfort care measure type' specifying other text. Describes the types of comfort care the participant/ subject received
Other, specify
  
Alphanumeric
Choose all that apply
Kathleen Moneymaker. Comfort Measures Only. Journal of Palliative Medicine. June 2005, 8(3): 688-688. doi:10.1089/jpm.2005.8.688.
Adult;Pediatric
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Palliative/Comfort Care and End of Life Issues
Therapies
Treatment/Intervention Data
 
4000
Free-Form Entry
       
C14282
Do not resuscitate or intubate (DNR or DNI) indicator
DNRDNIInd
Indicates if participant/ subject was made DNR/DNI (Do not resuscitate or Do not intubate) during hospitalization
Was the participant/subject made DNR/DNI during the hospitalization
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
Choose one
No references available
Adult;Pediatric
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Palliative/Comfort Care and End of Life Issues
Therapies
Treatment/Intervention Data
DNR or DNI indicator
 
Single Pre-Defined Value Selected
       
C14283
Do not resuscitate or intubate (DNR or DNI) earliest documentation timepoint type
DNRDNIEarliestDocTimpntTyp
Timepoint of earliest documentation of DNR/DNI (Do not resuscitate or Do not intubate) during hospitalization
Earliest documentation of DNR/DNI
Day 1 or 2;Day 3 or after;Timing unclear;Not Documented/Unable to Determine (UTD);Unknown;
Day 1 or 2;Day 3 or after;Timing unclear;Not Documented/Unable to Determine (UTD);Unknown;
Alphanumeric
The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.) and in the format acceptable to the study database.
No references available
Adult;Pediatric
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Palliative/Comfort Care and End of Life Issues
Therapies
Treatment/Intervention Data
DNR or DNI earliest documentation timepoint type
 
Single Pre-Defined Value Selected
       
01-16-2019
Page 1 of 1