CDE Detailed Report
Disease: NeuroRehab
Subdomain Name: Dysphagia
CRF: Quality of Life in Swallowing Disorders (SWAL-QOL)
Displaying 51 - 66 of 66
Subdomain Name: Dysphagia
CRF: Quality of Life in Swallowing Disorders (SWAL-QOL)
Displaying 51 - 66 of 66
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C10305 | Quality of Life in Swallowing Disorders (SWAL-QOL) - careful diet annoy problem indicator | SWALQOLCarflAnnyProbInd | Scale assessing how true the following statement has been for the participant during the last month: Having to be so careful when I eat or drink annoys me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how much having to be careful when eating or drinking annoys the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Having to be so careful when I eat or drink annoys me. | 1;2;3;4;5 | Always true;Often true;Sometimes true;Hardly ever true;Never true | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10284 | Quality of Life in Swallowing Disorders (SWAL-QOL) - choking liquid problem indicator | SWALQOLChockngLiqProbInd | Scale assessing how true the following statement has been for the participant during the last month: Choking when you take liquids. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject chokes on liquid when drinking, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Choking when you take liquids | 1;2;3;4;5 | Almost always;Often;Sometimes;Hardly ever;Never | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10316 | Quality of Life in Swallowing Disorders (SWAL-QOL) - feeling tired indicator | SWALQOLFlngTrdInd | Scale assessing how true the following statement has been for the participant during the last month: Feel tired? As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject feels tired, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Feel tired? | 1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C17839 | Quality of Life in Swallowing Disorders (SWAL-QOL) - help method type | SWALQOLHelpMethdTyp | Type of help the subject/participant received filling out the questionnaire | Type of help the subject/participant received filling out the questionnair | If someone helped you fill out this questionnaire, how did that person help you? | 1;2;3 | Read you the questions and/or wrote down the answers you gave;Answered the questions for you;Helped in some other way | Numeric Values |
circle one |
No references available | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10295 | Quality of Life in Swallowing Disorders (SWAL-QOL) - coughing stuck food liquid out mouth problem indicator | SWALQOLCghStkFdLiqOtMthProbInd | Scale assessing how true the following statement has been for the participant during the last month: Coughing food or liquid out of your mouth when it gets stuck. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject feels the need to cough food or liquid out of mouth when it's stuck, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Coughing food or liquid out of your mouth when it gets stuck | 1;2;3;4;5 | Almost always;Often;Sometimes;Hardly ever;Never | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C18106 | Quality of Life in Swallowing Disorders (SWAL-QOL) - help method indicator | SWALQOLHlpMethdInd | If received help, what type of help did the subject receive, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | If received help, what type of help did the subject receive, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | If someone helped you fill out this questionnaire, how did that person help you? | 1;2;3 | 1;2;3 | Numeric Values | No references available | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-18 09:11:50.26 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10306 | Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem discourage indicator | SWALQOLSwllwngProbDiscrgInd | Scale assessing how true the following statement has been for the participant during the last month: I've been discouraged by my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how much subject gets discouraged with swallowing problem, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | I've been discouraged by my swallowing problem. | 1;2;3;4;5 | Always true;Often true;Sometimes true;Hardly ever true;Never true | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10285 | Quality of Life in Swallowing Disorders (SWAL-QOL) - thick saliva phlegm problem indicator | SWALQOLThicSalvPhlgmProbInd | Scale assessing how true the following statement has been for the participant during the last month: Having thick saliva or phlegm. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject experiences having thick saliva or phlegm, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Having thick saliva or phlegm | 1;2;3;4;5 | Almost always;Often;Sometimes;Hardly ever;Never | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10317 | Quality of Life in Swallowing Disorders (SWAL-QOL) - trouble staying asleep indicator | SWALQOLTrblStyngAslpInd | Scale assessing how true the following statement has been for the participant during the last month: Having trouble staying asleep? As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject has trouble staying asleep, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Having trouble staying asleep? | 1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C17840 | Quality of Life in Swallowing Disorders (SWAL-QOL) - marital status | SWALQOLMaritalStatus | Status of whether the participant is married, divorced, separated, widowed, or never married | Status of whether the participant is married, divorced, separated, widowed, or never marrie | What is your current marital status | 1;2;3;4;5 | Never married;Married;Divorced;Separated;Widowed | Numeric Values |
circle one |
No references available | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10296 | Quality of Life in Swallowing Disorders (SWAL-QOL) - figuring out eating problem indicator | SWALQOLFigrngOtEatngProbInd | Scale assessing how true the following statement has been for the participant during the last month: Figuring out what I can and can't eat is a problem for me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates subject feels figuring out what to eat/not to eat, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Figuring out what I can and can't eat is a problem for me | 1;2;3;4;5 | Strongly agree;Agree;Uncertain;Disagree;Strongly disagree | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C18107 | Quality of Life in Swallowing Disorders (SWAL-QOL) - completion date | SWALQOLCompltDate | Date the subject completed this questionnaire, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Date the subject completed this questionnaire, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Please write today's date here | Date or Date & Time | No references available | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-18 09:11:50.26 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Free-Form Entry |
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| C10275 | Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem indicator | SWALQOLSwllwProbInd | Scale assessing how true the following statement has been for the participant during the last month: Dealing with my swallowing problem is very difficult, as part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how difficult dealing with swallowing problem is, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Dealing with my swallowing problem is very difficult. | 1;2;3;4;5 | Very much true;Quite a bit true;Somewhat true;A little true;Not at all true | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10307 | Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem frustrating indicator | SWALQOLSwllwngProbFrstrngInd | Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem frustrates me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how much swallowing problem frustrates the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | My swallowing problem frustrates me. | 1;2;3;4;5 | Always true;Often true;Sometimes true;Hardly ever true;Never true | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10286 | Quality of Life in Swallowing Disorders (SWAL-QOL) - gagging problem indicator | SWALQOLGagngProbInd | Scale assessing how true the following statement has been for the participant during the last month: Gagging. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject experiences gagging problem, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Gagging | 1;2;3;4;5 | Almost always;Often;Sometimes;Hardly ever;Never | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10318 | Quality of Life in Swallowing Disorders (SWAL-QOL) - feeling exhausted indicator | SWALQOLFlngExhstdInd | Scale assessing how true the following statement has been for the participant during the last month: Feel exhausted? As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject feels exhausted, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Feel exhausted? | 1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
