NINDS Common Data Elements Harmonizing information. Streamlining research.

Standards

This portal is organized according to the general and disease-specific data standards that have been developed by the NINDS Common Data Element (CDE) Project thus far:

• General (CDEs that cross diseases)
• Epilepsy
• Parkinson's Disease
• Spinal Cord Injury
• Stroke
• Traumatic Brain Injury

When searching for CDEs to use in your study, we encourage you to first visit the General CDE Standards page and then to visit the disease-specific page that is most appropriate for your study.

The pages listed above contain a variety of information, including:

• Data Standards
• CDE Catalogs, including definitions and recommended values
• Case Report Form (CRF) Modules
• Guidelines (e.g., recommended procedures)
• Overview of Data Standards Development
• Acknowledgements
• References
• Feedback

The disease-specific standards for the following will be added to this site as soon as they become available:

• Frontotemporal Dementia (FTD)
• Muscular Dystrophy (MD)
• Huntington’s Disease (HD)
• Amyotrophic Lateral Sclerosis (ALS)
• Headache